Pakistan Lacks Data on People with Albinism, Hindering Access to Education, Healthcare, and Employment

Pakistan has no official statistics on the number of people with albinism, leaving their needs invisible in schools, health services and the labour market. A June 2026 visit by UN Independent Expert Malooka‑Anne Miti‑Drummond highlighted that policies, programmes and data systems overlook the condition. Activists and individuals such as 24‑year‑old Adeel Nasir and 39‑year‑old Sundus Arif report that schools provide only ad‑hoc adjustments—larger print, shaded seating, extra time—yet lack formal guidelines or support. A disability certificate issued to Adeel is based on visual impairment, not on albinism itself, and no separate “albino” category exists in government records. The absence of data limits planning and budget allocation, while WHO stresses early eye care, sun protection and regular medical monitoring to reduce complications. Without visibility, children with albinism face bullying, drop‑out risks, and limited employment opportunities.